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The year was 1990, and Jocelyne Stager was an
8-year-old healthy child who had no concerns other than avoiding
going to bed early, and trying to maximize her playtime as much
as possible. Jocelyne lived in an urban industrialized, multicultural
city in Cambridge, Ontario and had lived there her entire life.
Most individuals in Cambridge are of the middle-class level, and
the education level is diverse. She attended a private Christian
school, and was near the top of her class for academic achievement.
Jocelynes parents worked very hard to provide all they could
to her and her younger sister, Lee-Anne.
One unsuspecting day, Jocelyne fell off of her
bicycle, while racing a friend, and fractured her left humerus.
Her parents immediately took her to the local hospital, (Cambridge
Memorial Hospital), and an X-ray confirmed their fears. A sling
was placed on the left arm to ensure that movement would be limited,
and healing would take place in approximately six weeks. Jocelyne
left the hospital promising her doctor she would be careful with
her injured limb.
However, Jocelynes arm continued to ache
profusely, and began to swell at an alarming rate. Jocelynes
mom, being a registered nurse, grew concerned with the appearance
of her arm, and brought her back into the hospital. The doctor
agreed that the swelling of the arm was unusual and ordered more
X-rays. A cyst was found in the humerus, but the doctor was indecisive
in concluding whether or not the cyst was responsible for the
unexplained swelling. He claimed that cysts are a common growth
that can appear on bones in children. Weeks later the swelling
persisted, and a biopsy was booked by Dr. Stapleton. Unfortunately,
the doctor could not control the bleeding during the surgery and,
had no choice but to close the incision.
Jocelyne woke up from the biopsy and discovered
herself in an ambulance on her way to The Hospital for Sick Children,
in Toronto. She was admitted and booked for another biopsy a few
days later. The gifted orthopaedic surgeon who performed the second
biopsy was Dr. Ivan Krajbich. Dr. Krajbich approached Jocelynes
parents who were waiting for the results and told them the biopsy
was successful. However a tumour was found called Ewings Sarcoma.
He suggested that chemotherapy treatments should be introduced
immediately, and once the tumour had decreased, he would surgically
remove the rest. Dr. Krajbich informed Jocelynes parents
that this particular type of cancer was extremely rare (approximately
1 in 500 000 to 1 000 000), and that he was not sure what could
have caused it. He suggested that possibly pollution may be the
cause, or even that genetics could play a possible role. However
there was no previous bone cancer on either side of the families.
The chemotherapy and surgery was to be done
at Sick Kids, because The Cambridge Memorial Hospital just did
not have the resources to treat paediatric oncology. Although
it would have been nice if Jocelyne could have remained in her
hometown for her treatment, it was just not possible. The reason
that Cambridge could not offer cancer care to children was because
there was such a low demand and not enough funds; Toronto and
Hamilton offer this particular type of care, and they are relatively
close to Cambridge. Being so young, Jocelyne was confused and
unsure of what cancer actually was. However, she trusted her parents
and her new favourite doctor to make the best decisions for her.
Soon after, chemo treatments began, alternating a heavier dose
versus a lighter dose every three weeks. Jocelyne grew extremely
weak, and suffered from febrileneutropenia, which is a lack of
white cells. Day by day, her hair began to fall out and her weight
began to drop dramatically.
Jocelyne spent numerous weeks in the hospital,
and encountered many roommates along the way. People from all
over the world came to The Hospital for Sick Children, because
Canada offers such excellent healthcare. One of her roommates
was a petite girl named Trae, and she came to Sick Kids all the
way from Vietnam. She could not speak any English, however Jocelyne
and her still managed to form a unique bond. One that consisted
of smiles and reassurance that they were both going to come out
of this okay. Jocelynes mom was speaking with one of the
nurses one day about Traes situation, and discovered that
Sick Kids had flown Trae and her family to Canada and was providing
all her care for free; as she was unable to afford it in her own
country. The Hospital for Sick Children is able to provide occasional
charity cases like Traes due to donations.
Jocelynes parents began to realize how
fortunate they were to live in a country that provides health
care to all, and not just to who can afford it. The estimated
cost for Jocelynes chemotherapy treatments alone was tens
of thousands of dollars, with still many more procedures ahead
of them. Her parents began to appreciate Canadas health
care system in a way like never before, because if they had had
to pay out of their own pockets, they would have lost everything.
After several more months, the tumour finally
began to shrink and, reconstructive surgery was booked. Jocelyne
was terrified of having yet another operation, but Dr. Krajbich
assured her that he would look after her. Jocelyne never let them
put her to sleep, until Dr. Krajbich was in the room because he
made her feel safe in such an uncomfortable environment. Her surgery
lasted 11 hours, and consisted of the removal of her humerus,
along with several major muscles and a bone graft. A donor humerus
was put in place of hers, and metal plates were put in to offer
protection. Jocelyne woke up in the recovery room with a pink
body cast on from her waist up. Dr. Krajbich came by and told
her she handled it like a pro. She was relived that it was over
and concentrated on her upcoming physiotherapy.
The cast had to remain on for six weeks and
it was not a pleasant experience. During the last couple weeks,
the cast became itchy, hot and heavy. To lift Jocelynes
spirits though, a phone call from the Terry Fox Run of Cambridge
called and asked her if she wanted to lead the walk that year,
which was scheduled for the following week. Her parents politely
declined the request, thinking that Jocelyne could not physically
handle the walk, just a few short weeks after surgery and with
the weight of her cast. However, Jocelyne insisted that she could
handle the walk, and told her parents she would do it. The walk
was difficult for her and, she was one of the last people to arrive
back, but she did it, and was extremely proud of herself.
Shortly after the walk, Jocelyne and her parents
made the short trip back to Toronto to finally have the cast removed.
She was excited and nervous to get rid of the annoying hunk of
fibreglass once and for all. Dr. Krajbich and an assistant took
out the loud saw and insisted to Jocelyne that this procedure
would not hurt her one bit, as she expressed some concern at the
sound and sight of the saw. Once removed, Dr. Krajbich was happy
with the results of the surgery, and told Jocelyne she could begin
her physiotherapy.
Due to the positioning of the cast, Jocelynes
elbow joint was immobilized at a 90-degree angle. The after-care
of physiotherapy was critical in establishing a normal range of
motion once again in this joint. Jocelyne soon discovered that
she had a very limited range of motion in her shoulder joint.
This was due to the major muscles that were removed in her back,
shoulder and arm. She would never be able to raise her left arm
above her shoulder, and several athletic activities would have
to be avoided. Fortunately, Jocelyne handled this news optimistically
and continued on with her follow up care.
Throughout this life changing and challenging
experience, Jocelyne experienced a huge amount of social support.
Her family never left her side. In fact her mother took a year
off of work entirely just to be by her side everyday. Because
her mother was off work, this meant that only one income was supporting
the family. The community of Cambridge understood the financial
difficulties that her parents encountered and offered help in
any way they could. The school Jocelyne attended took care of
her and her sisters tuition that year. While other families
offered free child-care, cooked or even just dropped off cards
to let Jocelynes parents know that they were not alone.
The church that they attended offered prayer and extended the
prayer requests to British Columbia, Florida, Indiana, England,
Ireland and Scotland. The Canadian Cancer Society also offered
Jocelynes family transportation to and from Toronto to relieve
some of the stress. And finally, one of the most important people
that encouraged Jocelyne was Dr. Krajbich. Jocelyne and her surgeon
created an incredible bond that was evident to all the nurses
and other staff in the oncology clinic. He constantly encouraged
her, and she continuously thanked him for saving her life and
her arm.
Jocelyne continued to go for check-ups every
six weeks in the beginning, and her doctors told her that her
prognosis looked promising. Her check-ups eventually advanced
to every six months and, finally to once a year. Jocelyne is currently
21-years-old and is attending the University of Western Ontario.
She is entering her third year of Health Sciences and wants to
use her childhood experience with cancer to help others.
I wrote this story for one of my health care
classes this past year, that is why it is in the third person.
In the picture I am the one on the right. Thanks for giving me
this opportunity to motivate the boys biking across Canada! Tell
them to keep up the awesome job!
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